05-30-2015, 05:04 PM
(05-30-2015, 10:45 AM)BonnieBengal Wrote: My nephew also has neuroblastoma and he also had stem cell treatment. My family is affected, and little Elijah's parents are thrilled that it is in the media, because that means more money for research. Devon Still raised a lot of money for Cincinnati Children's Hospital, where Elijah is in experimental treatment currently. Neuroblastoma research has been underfunded in the past, so Leah Still is doing a great thing for kids like Elijah. So no, it is not hurtful at all. And for proof of that, here is an article by Paul Daughtery about Leah Still where my nephew Elijah is actually mentioned. It's in the bottom part of the article and Elijah's Mom is interviewed.
I'm all for supporting Leah's family. And yours. The publicity is wonderful for those who are still around to benefit from it. I just wanted to acknowledge that there are folks out there who weren't so fortunate, who lost loved ones without so much as a thread, blog, blurb, post, or tweet. They're allowed to feel frustration and jealousy, and that's how I am choosing to interpret grampahol's atitude.
When I used "hurtful" in my OP, I meant on a personal level, obviously not hurting the cause. For many, all this newfound coverage is simply too little, too late, and therefore depressing. Something along the lines of "Why wasn't my loved one special enough to get this attention when it might have helped?"... Or even on a wider basis, what makes that specific disease so special? Is it just the flavor of the month, like ALS was last year? I'm not saying he responded correctly, just saying it may have been said from a point of grief.
