11-06-2020, 01:41 AM
(11-05-2020, 10:58 PM)Cure4CF Wrote: https://www.cff.org/give-monthly/
We have a daughter with Cystic Fibrosis and the whole Family are huge Bengal fans. Not sure if this is what you were looking for, and even if not, what a thoughtful post. When we eventually beat this disease with help from people like you, we are dedicated to raise money for other causes. There are so many out there, it’s heart breaking!!
We don’t have a direct link to fundraise for our team as we have taken a few years off. It’s hard to ask for donations from the same people year after year. The site above is a direct link to the CF foundation that has done great work and have made great strides in treatment. Another that has done great work is our own Boomer https://www.esiason.org/
Thanks for reading and there is so many worthy causes to support out there!
CF is a difficult disease to live with for the sufferer and the caregivers because it is chronic, serious, currently incurable and requires almost constant vigilance. I know you know this firsthand, but I state it for those reading who may not be familiar with it. My heart goes out to you and your family. I know it is a heavy burden, but one that I know you all bear bravely and with strong hearts.
I guess Boomer's son, Gunnar, is now 29. Lifespans have been increasing for people with the disease, but as I understand it is hard for them to survive past their 40's. Many die when they are much younger. We gotta beat this thing!